What is Sickle Cell Disease? According to the American Society of Hematology, Approximately 70,000 to 100,000 Americans have sickle cell disease, the most common form of an inherited blood disorder. This disease, which is present in affected individuals at birth, causes the production of abnormal hemoglobin. Normally, the hemoglobin protein, which resides inside red blood… Continue reading About Sickle Cell Disease
A couple of years ago, we had Big Sister tested to see if she was a bone marrow match for Kennedy. First, let’s all get on the same page: Stem cell transplantation is a potential cure for Sickle Cell Disease. Stem cells can be found in bone marrow. According to C.S. Mott’s Children’s Hospital, bone marrow is the… Continue reading So… What’s Next?
April is here and it’s an exciting time for me personally. Real spring weather and my “Jamaica-versary” (get married in two places and you get two wedding anniversaries). The day in April I love most is April 30th. April 30th at 1:26 p.m. to be exact. Why April 30th? Because it’s my oldest daughter’s birthday.… Continue reading “Savannah Day” (Siblings Day)
The hubby and I love NBA basketball. Living in the Detroit area, we have not had much experience lately with our home team making the playoffs. So, while I wait for the Pistons to make their way back on top, it’s been interesting to watch players leave their teams for other teams throughout the league… Continue reading Madness or March, Fighting Against the “Comfort Zone”
When Kennedy was first diagnosed with Sickle Cell, people around me were great and full of encouragement. People who knew someone with Sickle Cell gave me all the positive reports of their lives, and people who didn’t know anyone with Sickle Cell researched people and found articles about PhD professionals, nurses, teachers, designers, engineers, entrepreneurs,… Continue reading Conquering Ain’t Easy
Kennedy’s Village, Inc. has added a new way to donate from your phone. Introducing Cash App Go to Cash App from your mobile phone and use the code below. Thanks for supporting Kennedy’s Village as we work to achieve our mission to “Bridge the Gap Between Research and Care.” Follow us on all forms of… Continue reading Donate via the Cash App
On Monday August 29, 2016, we’d just returned home from California. It was our first trip with two kids so I had A LOT to unpack. As I loaded clothes full of California sand into the washing machine, the vibration from my phone sent me back to my reality. It was a text from the… Continue reading Oh, Heavy Day
When I decided to start this blog, I was full of ideas on topics to post. I had no clue the toughest part would be deciding what to write first. Being honest, originally, I wasn’t that excited about being involved with social media. I think some people get caught in the trappings of it too… Continue reading Her Story